Origin
A few words from our CEO
　　
More than a decade ago, my son, Chen-Chen, was hospitalized due to some fever for unknown reasons. His skin was blistered and sloughed off. It seemed like he was on first-degree burn; charred mucous membranes and skin ulceration. Even the slightest dose of medicine and water would have caused excruciating pain.

It was as painful as it could be. However, Chen-Chen was such a thoughtful kid that he still took the medicine little by little, day by day. My heart ached to see him behave like a grown-up. I would rather to be the one who was lying in bed. I prayed that Chen-Chen could faint and stay in a coma, hoping to reduce any of his pain.

At the time, doctors there couldn’t trace the root cause of it. All I could do was consult every book that I could possibly find. At last, I found something similar to his symptom and asked the doctor about it. Without any hesitation, the doctor replaced all of the medicine administered on Chen-Chen but it was way too late.

At first, I didn’t think that there was anything that I couldn’t do. But what happened to Chen-Chen led me to be on the edge of breaking down. I could only follow what my wife believed, Jesus Christ, fasted and prayed. During my prayer, I saw something peculiar: There was a lake with fire, where endless human soul falling down in it. And everyone was lifted up again due to the Crucifixion of Jesus.

Suddenly, there was a voice coming from above, ”If we don’t make up, you will always be executed by burning.” I was shocked because all I want was the full recovery of my child. Why would I see it? Later I came to realize that what I had to face was my rigid attitude towards religious belief. In fact, after several years working in Eden Foundation, I have read the Bible, listened to sermon from Pastors and greatly affected by Liu Hsia, the founder of Eden Foundation. I gradually felt that there is omnipotent God who loves me and leads me. After going through this kind of uncertainty, I decided to be baptized.

Sending my son to the ICU, I couldn’t stay by his side. Fearing that he would feel lonely and scared, I asked God “if you really want to take Chen-Chen away, kindly accompany him with two angels like his parents. So he wouldn’t feel like breaking up with us.” God heard my prayer and sent two angels to lead him away while many sisters and brothers were praying for him.

10 years after, I had believed that SJS was fatal. Yet, during one new report on TV, I found out that someone survived but with severe sequela. Probably it’s God’s will for me to experience all this. And by his sleight of hand, I got to know Dr. Wen-Hung Chung from Chang Gung Memorial Hospital. Dr. Wen-Hung, Chung has served as a prestige SJS doctor and Adverse Drug Reaction Director at Chang Gung Memorial Hospital. He not only listens to every patient’s story carefully, he also encourages one of the TEN patients, Shi-Hong, Hsu, to found an association, hoping that patients could stick together, fight for their rights and support each other.
　　
To found an association, one has to deal with complex procedures, numerous administration processes and executive planning. Shi-Hong, Hsu, a blue-collar labor without much experience, stands out for this disease association, hoping that there won’t be another victim like him. Dr. Chung, besides his routine work, also does research on SJS and gives guidance to the medical schools. Every once in a while, he will have to attend international conferences to learn and exchange ideas from each other. However, the spirit is willing, but the flesh is weak. So we clicked when I met them on the idea of responding to those patients, hoping that years of experiences from Eden Foundation can assist on founding this association. And we also founded an SJS information platform that can eliminate the national boundaries to answer the questions of the patients and, at the same time, educate both the medical personnel and the public.

As the Bible puts it, “And we know that in all things God works for the good of those who love him.” Although many families have been suffered by the deceased of their loved ones, it is this kind of grief that has turned into strength that awakens the awareness of our medical field and facilitates our government and charity to work together on SJS. The more patients have been properly taken care of, the less regret their family has to face. And this is our original intention on founding this SJS association.

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